what you dont know bout me... Life story

[Adam]

When I was 8 years old I was getting really sick from anything I ate and no one could figure it out. I was admitted to Dartmouth hospital in Lebanon New Hampshire for further testing. in the time i was there (2 months) they tested me for different allergies and had no results. in this time i kept getting more and more sick. After a month they tested for a rare decease called EE or enofilic esophagitis . What is EE is it causing your esophagus to literally close up to not allow any food or liquid to pass upon eating a type of food you are allergic to. I tested POSITIVE but they still did not know what food type was causing the strange reactions. the top 5 allergens are SOY, Dairy, Egg, Peanuts, Gluten. I was tested for them all but at the time we did not fully understand what SOY was and what SOY was in. I was diagnosed with EE and food trigger were Egg Diary and SOY. after this was diagnosed I lost so much weight I couldn't swallow anything I was in a coma. They did a emergency tube that went from my nose to my stomach to pump foods and nutrients past my esophagus directly to my stomach. Unfortunately I woke up during the procedure and freaked out. I am now traumatized for this I can't go in a hospital for long without having flashbacks to the procedure and flipping out again.

Define eosinophilic esophagitis: is an allergic inflammatory condition of the esophagus. Symptoms are swallowing difficulty, food impaction, and heartburn. The disease was first described in children but occurs in adults as well. The condition is not well understood, but food allergy may play a significant role. It causing the white blood cells in your esophagus to double and triple to cause massive swelling which closes your esophagus.

They put me on a steroid called prednisone that slowly healed the damage done in my esophagus and regulated the white blood cells. It was a long process but it made me better at that time. I side effects of the medication was making me mentally unstable and crazy.

After 2 weeks pasted from being tubed, I was released to go back home with the tube and machine still in. I had the tube extracted 1 month after going home. I started gaining weight again and from year 8 to 10 I could not eat any dairy soy or eggs. Thank god my mother was a professional cook she made everything home made

When I was 10 years old we decided to reintroduce egg again. plain eggs bothered me because the suffer in the egg but mixing the egg into meals did not bother me. when I was 12 we reintroduced diary. I also was diagnosed with IBS or Irritable Bowel Syndrome which causing diary products of high volume to inflame my stomach or bowls and cause pain, cramping, diarrhea ect. We found as long as I did not eat something with to much dairy in it I was fine. so this ruled out eggs and diary as a trigger or allergen but SOY was still a possibility. at the age of 13 we tried to introduce SOY back in and I ended up right back in the hospital. so then we knew SOY was the trigger.

Throughout all my earlier years until i was 12 I never understand what I had wrong with me so I would still "cheat" and eat something that tasted great like a cookie that had soy in it not realizing I was hurting myself every time. I was put back in the hospital multiple times throughout my early years of life. I didn't understand at the time how to say NO to a friend offering me a cookie or something without having to explain why I couldn't eat it. when you are that young you don't understand how to do a lot of normal occasions found later in life.

Since I was 8 years old I can not eat any kind of SOY products. 12 years ago this decease was just being discovered and doctors did not fully understand and still to this day they do not fully understand it. at this time food companies did not list if there was SOY in their products it could have been a hidden ingredient which I had to call every single company to find out. now a days by law companies have to list "allergen information" on their packaging if it contains this if it contains that. You would be amazed what SOY is in. if you start reading the things you eat you will be amazed.

for the past 4 years i have been loosing weight rapidly lost a total of 60lbs currently weigh 110lbs at age 21. Every time i ate anything I would have severe pain in my stomach to the point where a few times i ended up in the hospital. I first went to a standard physical doctor and he said I was a ulcer. after that was diagnosed I was put on a antibiotic called Zeregid which is a anti acid pump inhibitor which also repairs damage for acid and to stay far away from acidic foods. I was also diagnosed with Acid reflux decease and GERD when I was 8yrs old. I was on this for 2 years. The pain kept growing more and more in density no matter what I ate if it was acidic foods or a glass of water. When I took the Zegerid it helped with the acid but if I skipped it 1 day i would be bad to square one. In this 2 year period My medicade (health insurance) declined Zegerid from my coverage so i had to start paying 200-250$ out of my pocket. At the time i thought this was healing me but it was actually doing nothing more then killing the excess acid my stomach was creating.

after 3 years and I went back home to alabama, some of you knew I was in new hampshire for a year and got engaged. When i got home I started searching for a upper GI specialist. I was still seeing my normal doctor but he was still telling me i has a ulcer.
I found a Upper GI specialist in town and started seeing him. he did blood tests found nothing wrong. tested my gallbladder and found nothing wrong. then went a step further and did a scope test and biopsy on my esophagus and found I was getting another type of food that was causing my EE to flare up again and causing my stomach to create more acid then I could handle.

He then put me on a steriod called budesonide 40mg to regulate the white blood cells in my esophagus again and a prescription medication called pepcid in 40mg to kill the acid. this helped for about 3months then the pain started all over again.

in the past 2 months i saw him again and got referred to see a alergist to get a allergy test done. this was a huge discovery. they found I was having severe reactions to NUTS, hazel, almonds, peanuts, peacans ect. everything I have been eating to gain the extra proteins and carbs to attempt to gain weight.

for the past 3 weeks I have cut NUTS out of my diet along with SOY of course and am now starting to gain weight again without the PAIN !!! I still have to start a new medication called Nexium to regulate the acid my stomach in producing. I have yet to start this I have been taking a over the counter mediation called pepcid A/c twice a day which seems to help a ton but is expensive

So now I can not eat NUTS or SOY products. I am not as severe as some where I can be around NUTS just not eat. Others can not even be in the same area as someone eating NUTS

I am not on the road to recovery I have reintroduced some of my favorite foods and as long as I use a anti acid mediation like pepcid I am fine Finally I have something to look foward to. You have no idea what it does to you mentally not knowing if you are going to wake up the next day or not.

This is a little biography about my health conditions to better explain to everyone whats going on with me and why sometimes you see me very active and others you don't see me at all. Its a lot to read but try it

Here's a project for yall to do for 1 week. read everything you eat and write down how many things you eat have SOY or NUTS in them. ALL fast foods and restaurants have SOY in their foods. Soy is also a cheap flavor enhancer for fast food businesses to use in their crappy food.

[Timothy_N]

Can you eat soy lecithin?

[Adam]

[Timothy_N]

[megafusion]

You also posted this on d2jsp right>?

[Deranged]

I hope you get better, bro.

[Adam]

[Hardcore]

i couldnt live without chicken burgers
:S
im sorry for you

[jstanotherguy]

sounds scary to have a tube coming out of you...